Tailor-made Maternal PKU Diet Education and Women with PKU: Reproductive Experiences and Needs Throughout the Journey

Chimiak, Tom ORCID logoORCID: https://orcid.org/0000-0001-5328-5335 (2022) Tailor-made Maternal PKU Diet Education and Women with PKU: Reproductive Experiences and Needs Throughout the Journey. [Video]

Abstract

The output is an educational video. It was commissioned for an international teaching event for healthcare professionals to gain an insight into the metabolic PKU (Phenylketonuria) condition and the maternity perspective. Research Process: This research engaged with a focus / interview group made up of individuals that had PKU and been through the maternal journey. Chimiak created an open and non-intrusive atmosphere (utilising a multi-camera setup) to help relax the participants to unwind and express their journeys. Research Insights: The research provides an educational insight into the interviewee’s first-hand experiences with maternity and the PKU metabolic condition to healthcarers. Despite Chimiak having PKU himself, the maternal side is something he has no personal experience of. For him the research provided insights into the PKU metabolic condition from a new perspective. Dissemination: The research and conversations were shared with over 170 healthcare professionals throughout the world during an international online teaching event.

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